We are a Happy Family

We are a Happy Family

Friday, February 12, 2016

Carson's Party Hat

Dec. 31, 2015
Carson has brachycephaly, so he needs a helmet because his head is as wide as it is long.  (The length is supposed to be double the width by "normal" head standards.  We heard it was a long process to get one and so I started working on it in mid-November to get our ducks in a row with the pediatrician, physical therapist, orthotics office, and insurance.  Helmets are super pricey ($2500-$3000) and we'd already met our deductible in 2015, so we obviously really wanted it to go through since our deductible is $10,000. Eek.

We were seriously so lucky and Carson got fitted for his helmet on Dec. 31. Talk about cutting it close! We're so grateful that he was able to get it in time and also that we can fix his weird head now and not have issues later. It's been a rough transition for the poor kid since he has to wear it 23 hours a day and can only take it off to get dressed, clean the helmet, bath, and for physical therapy stretches. He's struggled to sleep a lot (which is crappy since he's our worst sleeper anyway).  It's only for a few months. Hopefully when he gets it off he'll be able to sleep better again. Fingers crossed...

At any rate, he sure looks dang cute in it! The thing I was most sad about when I originally found out that he needed a helmet is that the helmet would cover up his awesome, sticks straight up little mohawk.  But as you can see it's got a little hole on the top for ventilation and luckily his hair can still poke up.

When I brought Carson home from his appointment to get his helmet I said, "look Kaden, Carson got a new party hat just in time for New Year's Eve tonight."

K: "Mom. That's not a party hat. Real party hats are pointy."

My mistake Kaden, my mistake...



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